Well, after another week of pestering and hounding the surgical secretaries I have some news! It seems to have been incredibly challenging to get 2 surgical teams to communicate with any sort of clarity and, although I have some news, what I have heard today is still rather patchy.
The neurosurgeon has said that he is happy to proceed with the surgery. This means that I now have an outpatients appointment on the 22nd Feb at 11.30 (which means I’ll probably see the doctor at around 1pm!). At this appointment I hope to find out more details about things like how the N.S. will be involved in the surgery, where it will take place (St. James or LGI) and various other details.
In these past 3 weeks I have been so focussed the frustrations we have had with the NHS beastie that I now find myself re-facing the reality of surgery. This is big stuff – I think that, with the distraction of incredibly poor communication on the behalf of the NHS, I forgot that this is all part of a potentially life changing situation.
The reality check has hit me again – I didn’t quite expect it to feel like this.
After the phone call informing me of the progress that had been made there was a sense of relief and a brief period of “lightness” that it was all over and done with. However, my perspective has now widened out to see the bigger picture.
It’s a bit like being in a traffic jam, you want to just get going but there’s a hold up that you can’t really influence. When the traffic starts to flow again, you feel a sense of relief before you set your mind to the journey you are on.
The destination is potentially life changing but the path I need to take is not going to be at all easy to navigate. So tonight I feel the reality of it all again, the fact that things are moving again is really great now all I need to do is remember how to deal with it all.
Embracing the journey…?
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The destination will most definitely be life changing, just like every step you have taken so far! Remember one of the only things you can control is how you choose to feel about any of it and ultimately all of it. Decide what you want to feel and just make it happen !! Simpler than it first sounds !! Have faith in your ability to choose Jonny ! I do !
Hugs
Come on Jonny! Grace grace and more grace. Thanks for the update
Yes – the challenges of nothing happening and the challenges of something happening are both… challenges! Like mountains and deserts, you need different equipment – but the source of strength is the same. Great peace to you Jonny – you are not alone X